The following may be best understood by those suffering from TBI.
I have heard the term “get better” used as I travel through Planet TBI many times, and it has never made sense to me. Therapists have used it, doctors have used it, but that does not make it make any more sense. It’s been said like this: “if you do this exercise over and over again, you’ll get better”, or like this: “When you get better_”.
All that comes across to me, (a person with a TBI), is that they’re saying “I don’t know what a TBI is, but I’m assuming I can use the word “better” when i talk about anything positive regarding it.”
You know what would be better? Answer: If the whole of society, beyond doctors understood what a TBI is, and what it means to live with one.
Think about it.
There is no “getting better” when you have a TBI. When you suffer a TBI, there is I guess “progress” at random, but the only thing that would be “better” would be to not have a TBI, and thats about it. There is no “better.” When you undergo trauma, there is nothing that would be “better” other than not undergoing the whole experience.
That’s a strange phrase: “getting better”. When you suffer a TBI, you hear a lot of strange phrases all across the board. There’s like a whole sack of awkward, difficult, infuriating words, said by doctors, therapists and seemingly whoever wants to talk about anything TBI related, even though they know nothing about it at all. Some other words, often directed towards a caregiver are “respite”,”break”, etcetera. And I just think for the survivor and caregiver, too, there is no ‘respite’, or break’. There never will be. Together, all our lives are forever changed. There is no better or worse. Time does not exist; just things happening exist.
All caregivers and survivors don’t “get better.” We aren’t given anything. We take progress, if we feel like going after it and grabbing it. You would “get better” playing a video game over and over. You would “get better” from a cold. There is no getting better with TBI, partly because TBI exists on Planet TBI, where there is no better or worse. It’s a place without clocks, where everything just exists and is unchangeable.
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